If you are a family member, friend, or neighbor who helps provided care for an ill, elderly or disabled individual who lives at home – help and support is available. The organizations and books listed below will provide you with information and assistance in gaining access to supportive services.
Southern Caregiver Resource Center
3675 Ruffin Road, Suite 230
San Diego CA 92123
(858) 268-4432, (800) 827-1008
(858) 268-7816 Fax
”The Southern Caregiver Resource Center offers services to family caregivers of brain-impaired adults or of the frail elderly, and is for residents of San Diego and Imperial counties. Services include: information and referral, counseling, family consultation and case management, legal and financial consultation, respite care, education and training, and Link-2-Care internet site”, Stephen G. Thein, PhD, Pacific Research Network, Inc.
919 North Michigan Ave., Ste. 1000
Chicago, IL 60611-1676
“The Alzheimer’s Association, the world leader in Alzheimer research and support, is a voluntary health organization dedicated to finding preventions, treatments and, eventually, a cure for Alzheimer dementia. Our mission is to eliminate Alzheimer’s disease through the advancement of research and to enhance quality care and support for individuals, their families and care partners”, Alzheimer’s Association web site.
Alzheimer’s Disease Education and Referral Center: (ADEAR)
P. O. Box 8250
Silver Spring, MD 20907-8250
“As a public, U.S. Government-funded resource, the ADEAR Center strives to be a current, comprehensive, unbiased source of information about AD. All our information and materials about the search for causes, treatment, cures, and better diagnostic tools are carefully researched and thoroughly reviewed by NIA scientists and health communicators for accuracy and integrity”, ADEAR web site.
The Area Agency on Aging
1366 East Thomas Road
Phoenix, AZ 85014
(602) 264-2255 – phone
(888) 783-7500 – toll free
(602) 230-9132 – fax
TTY / TDD (602) 241-6110
“The Area Agency on Aging strives to secure, promote and provide essential services to enhance the quality of life in a diverse and changing society. We meet this challenge through advocacy, coordination, building alliances, and promoting public awareness, guided by integrity, vision, and sustained commitment.”, Area Agency on Aging web site.
San Diego Eldercare Directory
A guide to independent living and long term care, The San Diego Eldercare Directory is designed to assist seniors, and those caring for or living with them, in locating services in San Diego County. Also listed are several support groups for the caregiver who has been going it alone and may appreciate group assistance and support from those in similar life situations.
“It [the publication] includes information on services and community programs that make it possible for seniors to live more independently, remain in their homes longer, or find the best long-term care for their specific needs. In additional to the hundreds of resources and tips for cutting through the eldercare maze, we’ve included answers to some of the questions asked most frequently by caregivers”, The San Diego Eldercare Directory.
BOOKS TO HELP BETTER UNDERSTAND ALZHEIMER’S DISEASE
NOTE: Most of the books listed above are available through your local chapter of the Alzheimer’s Association. Check the white pages or phone 1-800-660-1993 to be referred to the California chapter nearest you.
Alzheimer’s: A Caregiver’s Guide and Sourcebook, John Wiley & Sons, 1988Gruetzner, Howard.
Alzheimer’s Family Care Guide,The, 1984, The Long Beach Community Hospital Adult Day Care Center.
Alzheimer’s: The Answers You Need, Helen Davies and Michael Jensen 1998, Elder Books, P. O. Box 490, Forest Knolls, CA 94933, (800) 909-COPE.
Care of Alzheimer’s Patients: A Manual for Nursing Home Staff, American Health Care Association, 1985, Gwyther, Lisa.
Caring for Alzheimer’s Patients: A Guide for Family and Healthcare Providers, Plenum Publishing Corporation, 1989, Manning, Doug, Editor.
Family Care Guide, 1988, Alzheimer’s Association of Cape Cod.
Forgetting, The: Alzheimer’s: Portrait of an Epidemic, David Shenk
Home Safety for the Alzheimer’s Patient, 1988, Alzheimer’s Association of San Diego.
International Forum on Early Dementia, (Newsletter), 1067 Filbert Street, Suite 100, San Francisco, CA 94133, (415) 673-3881.
Just for You, (Booklet), Published by Alzheimer-Canada, 20 Eglinton Ave., West, Suite 1200, Toronto, Ontario, Canada, M4RIK8, (416) 488-8772. (Also available in Spanish.)
Living with Alzheimer’s Disease, The Prestige Press, 1986, Danforth, Art.
Loss of Self, The: A Family Resource for the Care of Alzheimer’s Disease and Related Disorders. NAD Penguin, Inc., 1986, Cohen, Donna, and Eisdorfer, Carl.
Managing the Person With Intellectual Loss at Home, 1980, The Burke Rehabilitation Center. White Plains, New York, 10605.
Perspectives: A Newsletter for Individuals with Alzheimer’s Disease, Alzheimer’s Disease Research Center, University of California, San Diego, 9500 Gilman Drive, La Jolla, CA 92093-0948, (619) 622-5800.
Show Me the Way to Go Home, Larry Rose1996, Elder Books, P. O. Box 490, Forest Knolls, CA 94933, (800) 909-COPE.
36-Hour Day, The, Johns Hopkins University Press, 1981, Mace, Nancy L. and Rabins, Peter V.
Understanding Alzheimer’s Disease, Charles Scribner’s Sons, 1988, Aronson, Miriam, Editor.
When Bad Things Happen to Good People, Avon, Inc., 1981, Kushner, Harold.
When Your Loved One Has Alzheimer’s, Harper and Row, 1989, Carroll, David L.